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Accomplishments by Families

Accomplishments of the parent support network: 
  • Created the paid position for parent support
  • Established a lending library for parents and patients that includes books, videotapes and Internet access
  • Offer family-to-family support and matches for parents with similar experiences (for example, parents of preemies or families affected by childhood cancer).
  • Support recruitment of physician specialists and participate in key physician and staff interviews
  • Develop hospital-based education services for school-age children
  • Provide “expert” testimony on the challenges of raising special children to nurses, physicians, and residents through public forums
  • Create Parent Resource Manuals in the NICU and the pediatric center to assist families to cope with hospitalizations.
  • Provide pagers to families enabling them to leave the patient area
  • Provide support to families of all faiths who experience the loss of an infant or child
  • Host events and fundraisers
  • Secured Free Internet access and a contract to provide secure web page development for families with acute and long-term illnesses